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Tag: Celine Dion

  • It’s difficult dealing with stiff person syndrome — Celine Dion

    It’s difficult dealing with stiff person syndrome — Celine Dion

    The difficulties of dealing with Stiff Person Syndrome (SPS) are brought to light by the recent disclosures made by multi-award-winning Canadian singer Céline Marie Claudette, better known by her stage name, Celine Dion.

    On March 15, 2024, the renowned crooner observed International Stiff Person Syndrome Awareness Day and shared that living with SPS has been one of the hardest things she has ever had to deal with.

    In an Instagram post sighted by Ameyaw Debrah Media, the ‘I’m Alive’ hitmaker made known that she remains “determined to one day get back onto the stage and to live as normal of a life as possible.”

    Her heartfelt message was accompanied by a photo of Dion with her three sons, René-Charles, Nelson, and Eddy, the twins.

    Dion and her late husband René Angélil, who passed away in 2016, were parents to their three children.

  • Celine Dion can’t control her muscles again – Sister reveals

    Celine Dion can’t control her muscles again – Sister reveals

    Claudette, Celine Dion’s sister, has provided a grim update on the singer’s ongoing fight with Stiff-Person Syndrome.

    She disclosed in a new interview that the multiple Grammy winner is having difficulty controlling some muscle movements.

    “She’s working hard, but she doesn’t have control over her muscles. What breaks my heart is that she’s always been disciplined. She’s always worked hard. Our mother always told her, ‘You’re going to do it well, you’re going to do it properly.’ It’s true that in both our dreams and hers, the goal is to return to the stage. In what capacity? I don’t know,” she said.

    This update comes one year after Celine announced her diagnosis of Stiff Person Syndrome, a rare neurological disorder characterized by painful muscle spasms and stiffness that typically interferes with patients’ daily lives.

    Due to the disease, Celine Dion had to postpone her highly anticipated Courage World Tour indefinitely in May 2023, expressing her apologies to her fans.

    In an interview with Le Journal de Montreal in August 2023, Claudette expressed optimism about their continuous hunt for therapeutic treatments for the disease.

    Claudette also said that their sister Linda Dion had moved into Celine’s home to help her three sons. René-Charles, Eddy, Nelson, and their aunt are all actively involved in Celine’s treatment, rehabilitation, and recovery.

    Source: Vanguard Nigeria